Science News

[Spanish translation and validation of the Neuromuscular Module of the Pediatric Quality of Life Inventory (PedsQL): evaluation of the quality of l…

A new interesting article has been published in Rev Neurol. 2018 Dec 1;67(11):425-435. English and titled:

[Spanish translation and validation of the Neuromuscular Module of the Pediatric Quality of Life Inventory (PedsQL): evaluation of the quality of l…

Authors of this article are:

Girabent-Farres M, Fagoaga J, Amor-Barbosa M, Bagur-Calafat C.

A summary of the article is shown below:

in English, SpanishTITLE: Traduccion y validacion al español del modulo neuromuscular de la escala Pediatric Quality of Life Inventory (PedsQL): evaluacion de la calidad de vida autopercibida por niños de 8-18 años con enfermedades neuromusculares y sus padres.Introduccion. La calidad de vida relacionada con la salud de los niños con enfermedades neuromusculares pediatricas se estudia desde la perspectiva de la autopercepcion y la percepcion de sus padres. Por ello, es esencial disponer de instrumentos validos, como el modulo neuromuscular de la escala Pediatric Quality of Life Inventory (PedsQL), para su correcta valoracion. Objetivo. Evaluar la validez y fiabilidad de la version española del modulo neuromuscular de la PedsQL para la medicion de la calidad de vida autopercibida por niños de 8-18 años con enfermedades neuromusculares y por sus padres. Sujetos y metodos. Una vez autorizados por Mapi Research Trust, se procedio a la validacion cognitiva de la version española del modulo neuromuscular. Posteriormente, se realizo un test-retest a 90 niños, de los cuales 50 tenian entre 8 y 12 años y 40 tenian entre 13 y 18 años, y a 85 padres de dichos niños, lo que permitio evaluar la consistencia interna, la fiabilidad y la validez de constructo. Resultados. El coeficiente alfa de Cronbach y todos los de correlacion interclase mostraron valores superiores a 0,8, lo que indica una consistencia y una fiabilidad excelentes. La validez de constructo sugirio que una estructura de mas dimensiones podria ajustarse mejor que una de tres y explicaria un mayor porcentaje de variabilidad. Conclusiones. La version española del modulo neuromuscular de la PedsQL para la autopercepcion de la calidad de vida de ni­ños de 8-18 años con enfermedades neuromusculares y percibida por sus padres presenta una excelente validez y fiabilidad.INTRODUCTION: The quality of life related to health of children with pediatric neuromuscular diseases is studied from the perspective of self-perception and parent-perception. It is therefore essential to dispose valid scales such as Pediatric Quality of Life inventory (PedsQL) Neuromuscular Module for its correct assessment.AIM: To assess the validity and reliability of the Spanish version of PedsQL Neuromuscular Module for self-perceived and parent-perceived quality of life of children aged 8-18 with neuromuscular disorders.SUBJECTS AND METHODS: The cognitive validity of the Spanish version of PedsQL was carried out with Mapi Research Trust permission. Subsequently, a test-retest was performed with 90 children volunteers with neuromuscular diseases, 50 aged 8-12 and 40 aged 13-18, and 85 of those children’s parents. This allowed an evaluation of PedsQL intra-observer concordance and internal consistency. Finally, construct validity was evaluated through factor analysis.RESULTS: The Cronbach alpha and all correlation intra-observer coefficients were higher than 0.8, indicating excellent validity and reliability and a higher internal consistency. The construct validity analysis suggested that a new construct with more might be a better fit than three and it will be able to explain a higher percentage of variability.CONCLUSIONS: The Spanish version of PedsQL Neuromuscular Module for self-perceived and parent-perceived quality of life of children aged 8-18 presented excellent validity and reliability.

Check out the article’s website on Pubmed for more information:



This article is a good source of information and a good way to become familiar with topics such as:

n/a

.

Categories: Science News