Assessment of Health-Related Quality of Life in Pediatric Acute Lymphoblastic Leukemia Survivors: Perceptions of Children, Siblings, and Parents.
Authors of this article are:
Kızmazoğlu D, Sarı S, Evim Sezgin M, Kantarcıoğlu A, Tüfekçi Ö, Demir Yenigürbüz F, Baytan B, Yılmaz Ş, Güneş AM, Ören H.
A summary of the article is shown below:
OBJECTIVE: We investigated the health-related quality of life (HRQL) in survivors of pediatric acute lymphoblastic leukemia (ALL) and evaluated the perceptions of children, siblings, and parents.MATERIALS AND METHODS: Seventy ALL survivors, who were between 7 and 17 years and completed therapy ≥2 years were included. The control group consisted of healthy siblings. HRQL was assessed by the age specific KINDLR questionnaire.RESULTS: No significant differences could be found among HRQL scores of ALL survivors with respect to variables such as sex, risk group, and having chronic illness. HRQL scores for physical well-being, emotional well-being, family, and social functioning of the patient and sibling self-reports and parent proxy reports were lower than the expected value for healthy and chronically ill children.CONCLUSION: These results demonstrated that both ALL survivors and their families need help for psychologic counseling programs to improve their HRQL even after completion of therapy.
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Acute lymphoblastic leukemia;heal th-related quality of life;INDL R questionnaire
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